News Summary
As January begins, South Carolina honors Birth Defects Awareness Month. Governor Henry McMaster aims to raise awareness about the challenges families face, providing resources and support for children born with birth defects, which are the leading cause of infant deaths in the state. The story of Roczen, a brave boy with complex health issues, highlights the emotional strain on families while emphasizing the importance of community support and understanding.
Awareness Grows for Families Facing Birth Defects in South Carolina
Columbia, South Carolina – As January rolls in, South Carolina is taking a big step to shine a spotlight on birth defects and the challenges they bring to families. Governor Henry McMaster has declared this month as Birth Defects Awareness Month, a chance to spread the word about the struggles many families endure and the resources available for them.
The Facts Behind Birth Defects
In South Carolina, birth defects are the leading cause of infant deaths, and for those who survive, the journey can be filled with lifelong challenges. According to the South Carolina Department of Public Health (DPH), approximately 1 in every 33 babies is born with some form of birth defect. These issues can range from physical disabilities to mental health concerns, affecting both the children and their families.
Understanding the Challenges
One touching example of the difficulties families face is the story of a brave 5-year-old boy named Roczen. Born with a complex set of health issues, including cerebral palsy and a rare form of epilepsy, Roczen has spent much of his life navigating a world filled with medical appointments and therapies. Tragically, Roczen’s mother passed away when he was just 19 months old, highlighting the emotional strain such challenges can impose on families.
Despite the hurdles Roczen faces, support systems are now in place thanks to state and federal funding, which provides around $300,000 each year from a CDC grant. This funding goes toward essential services like occupational, speech, and physical therapy, which Roczen benefits greatly from. Such resources not only help children grow and develop but also offer much-needed respite for caregivers, like Roczen’s caretaker, who deeply values early intervention services.
Encouraging Support for Families
The emphasis on awareness this month is not just about recognizing the existence of birth defects but also about understanding how to better support families. The DPH, alongside the Department of Disabilities and Special Needs (DDSN) and the Department of Health and Human Services (SCDHHS), invites residents to engage in meaningful conversations surrounding these issues and help combat stigma and isolation that families often feel.
Resources are available for parents looking for support. Families can reach out to the DDSN’s toll-free service at 1-800-289-7012, where they can get information and referrals for their children. Various programs also exist to assist in navigating the complex world of early intervention, helping families ensure their children receive the care they need as early as possible.
Moving Forward with Compassion
Open conversations about birth defects can foster understanding and promote a more inclusive environment for all, including in schools where children with disabilities can benefit from sign language education and easier access to therapies. Families like Roczen’s encourage dialogue to normalize discussions about such conditions, which can significantly improve the lives of those affected.
As South Carolina embraces Birth Defects Awareness Month, remember that the support available can be a lifeline for families. By working together, communities can create a nurturing environment that not only uplifts those facing the hardships of birth defects but also celebrates their resilience and strength.
Conclusion
This month, let’s come together to raise awareness, show compassion, and provide support to families with children born with birth defects. It takes a village, and by understanding and advocating for these families, we can help change lives for the better.
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Additional Resources
- WLTX: Heartwarming Family Shares Resources for Individuals with Birth Defects
- Cola Daily: McMaster and State Agencies Raising Awareness about Birth Defects in SC
- Law360: Chemical Co. Says Insurer Owed Defense for Birth Defect Suit
- The State: Local News on Environmental Issues and Birth Defects
- Wikipedia: Birth Defect
Author: STAFF HERE IRMO
The IRMO STAFF WRITER represents the experienced team at HEREIrmo.com, your go-to source for actionable local news and information in Irmo, Lexington and Richland Counties, and beyond. Specializing in "news you can use," we cover essential topics like product reviews for personal and business needs, local business directories, politics, real estate trends, neighborhood insights, and state news affecting the area—with deep expertise drawn from years of dedicated reporting and strong community input, including local press releases and business updates. We deliver top reporting on high-value events such as the Irmo Okra Strut Festival, Harbison Community Events, and local sports tournaments at the Palmetto Health Credit Union Foundation Stadium. Our coverage extends to key organizations like the Irmo Chapin Recreation Commission and the Lexington Chamber and Visitors Center, plus leading businesses in retail and healthcare that power the local economy such as Village at Sandhill and Lexington Medical Center. As part of the broader HERE network, including HEREAiken.com, HEREBeaufort.com, HEREChapin.com, HERECharleston.com, HEREClinton.com, HEREColumbia.com, HEREGeorgetown.com, HEREGreenwood.com, HEREGreenville.com, HEREHiltonHead.com, HEREIrmo.com, HEREMyrtleBeach.com, HERENewberry.com, HERERockHill.com, and HERESpartanburg.com, we provide comprehensive, credible insights into South Carolina's dynamic landscape.
